Sam’s third VEEG was no more successful than the first two, but we wanted to share some of the photos. We spent 9 out of 11 days sleep deprived, not allowing more than 4-5 hours a night. One night we had to keep him up for 24 hours. (we went home on the 11th day) We have many questions still unanswered, but one thing was made clear. We are no longer allowing testing to see about surgical candidacy, and he is very relieved over this! The doctors right now are unclear what the prognosis is and have even opened the thought that he may outgrow seizures in puberty. While we retain our doubts, we will not go into more invasive testing with so many inconclusive findings, and differences of opinions. We wish for clearer answers and an easier path, but know his seizures are far less to deal with than what many have on a daily basis. If you are on this same path, find a doctor who will work with you, listen to your concerns, and communicate openly. If this is not happening, keep searching for the right facility for you and your child.
	Our second night in the hospital we were visited by players from the New Haven Raven’s, a farm team for Toronto Blue Jays and their mascot! Sam was thrilled and was given a Raven’s ball cap, but he could not wear it until he went home!
	Anna came with us for the first 4 days since Dad was working. She was a huge help keeping him occupied, playing Nintendo, allowing mom to go stretch her legs…She was very ready to leave that 5th day to spend time with Nana and get some sleep. I will restrain from posting the photo of her sleeping on the window ledge! The hospital was so full we had one chair/cot and one semi reclining chair for her to sleep for 4 nights! She put up with a lot to help us out. She came back for 2 ½ days at the end of our stay.